Organizations working on congenital anomalies
International Clearinghouse for Birth Defects Surveillance and Research
Center for Disease Control and Prevention (CDC)
International Birth Defects Information systems (IBID)
California Birth Defects Monitoring Programme
National Birth Defects Prevention Network (NBDPN)
National Perinatal Statistics Unit, Australia (NPSU)
Alliance of Genetic Support Groups
BINOCAR: British Isles Network of Congenital Anomaly Registers
European Surveillance of Congenital Anomalies
European Network of Teratology Information Services
Organization of Teratology Information Services
National Center on Birth Defects and Developmental Disabilities
National Down Syndrome Society
National Organization for Rare Disorders
Forum on Child and Family Statistics
National Society of Genetic Counsellors
Centre for Arab Genomic Studies (CAGS)
Public Health Genetics Foundation (PHG Foundation)
Spina Bifida, Hydrocephalus, Information, Networking, Equality (SHINE)
SOFT UK helps those affected by trisomy 13, trisomy 18
Spina Bifida and Hydrocephalus Associations
The Society for Birth Defects Research and Prevention
