Who? What? Where?
Who is doing what, and where, about congenital anomalies in the globe? (this section will be updated regularly)
- International Clearinghouse for Birth Defects Surveillance and Research
- Center for Disease Control and Prevention (CDC)
- International Birth Defects Information systems (IBID)
- March of Dimes
- California Birth Defects Monitoring Programme
- National Birth Defects Prevention Network (NBDPN)
- National Perinatal Statistics Unit, Australia (NPSU)
- Alliance of Genetic Support Groups
- BINOCAR: British Isles Network of Congenital Anomaly Registers
- European Surveillance of Congenital Anomalies
- World Health Organisation
- European Teratology Society
- European Network of Teratology Information Services
- Mother Risk
- Organization of Teratology Information Services
- National Center on Birth Defects and Developmental Disabilities
- Children’s Health Network
- National Down Syndrome Society
- National Organization for Rare Disorders
- Forum on Child and Family Statistics
- National Society of Genetic Counsellors
- SMILES
- Centre for Arab Genomic Studies (CAGS)
- Global Birth Defects
- Contact a Family
- EUROlinkCAT Cohort
- Orphanet
- Public Health Genetics Foundation (PHG Foundation)
- Spina Bifida, Hydrocephalus, Information, Networking, Equality (SHINE)
- SOFT UK helps those affected by trisomy 13, trisomy 18
- Public Health Foundation
- Spina Bifida and Hydrocephalus Associations
- The Society for Birth Defects Research and Prevention
- Public Health Genetics and Genomics Framework
- Congenital Anomalies (journal)
- CJC Pediatric and Congenital Heart Disease (journal)
- International Journal of Cardiology Congenital Heart Disease (journal)
- Congenital Heart Disease (journal)
- Birth Defects Research (journal)
- Global Health, Epidemiology and Genomics (journal)
